Community survey
If you have been referred to GSWA by a healthcare professional (general practitioner or specialist) or have attended an appointment with GSWA for yourself or for someone you care for in the last 10 years, you can share your experience and ideas for the future in this Community Survey (hosted by the Health Consumers' Council (WA) Inc.).
- Your appointment may have been in-person at a clinic in Perth or in a regional town, via telehealth, or during an inpatient stay at a public hospital.
- The appointment(s) would have involved a geneticist, genetic counsellor, or both, and could have been related to familial cancer, a family history of disease, an increased risk result on prenatal screening, foetal anomaly diagnosis or monitoring, or related to other genetic disorders like (but not limited to) cystic fibrosis, muscular dystrophy, fragile X syndrome, long QT syndrome, or haemophilia.
- Please note that your referral or appointment must have taken place in the last 10 years (2014 or later) to be eligible for this survey.
You may also complete the survey on behalf of a community, peer support or consumer advocacy organisation that supports people living with genetic conditions who may have attended GSWA.

We greatly appreciate your time and contribution in helping us to improve the experience of people impacted by a genetic condition, especially as we understand that living with a genetic condition might be challenging and cause anxiety.
Community focus groups
We are also conducting focus groups in August and September 2023. If you have been referred to or have attended an appointment with GSWA for yourself or for someone you care for, you are invited to submit an expression of interest to participate in these activities.
Please note this information will be held by the Health Consumers’ Council (WA) Inc. specifically for the purpose of contacting you to be further involved. Your contact details will be destroyed at the conclusion of the project.
We are seeking a diverse representation of people to participate in the focus groups, including (but not limited to):
- Individuals who have attended GSWA in the last 10 years who identify as being of Aboriginal or Torres Strait Islander origin
- Individuals who have attended GSWA in the last 10 years who identify as being from a culturally and linguistically diverse background
- Individuals who have attended GSWA in the last 10 years who live in a rural, regional or remote location in WA
Please contact the Health Consumers’ Council on (08) 9221 3422 or info@hconc.org.au to find out more about these activities.